Two anniversaries
Wednesday, February 4, 2009
Carpal Tunnel Release
Thursday, December 18, 2008
Full of thanks
Tuesday, December 9, 2008
Felt the urge
Tuesday, October 28, 2008
Life these days
Tuesday, October 21, 2008
So so many emotions at the Symposium
Monday, June 30, 2008
Tacos for Trey!!!!!!!!!!!!!!!!!!!
Monday, May 5, 2008
Steve Nash, Rare Disease Day...
Wednesday, February 27, 2008
One year of ERT!!
Tuesday, February 5, 2008
What I’m talking about
Friday, December 21, 2007
Life experiences
Tuesday, December 18, 2007
A sister for Trey and Avery & UNC
Thursday, November 8, 2007
Tube surgery #3
Monday, October 1, 2007
Thanks Stargate!!
Wednesday, September 19, 2007
Yeah, frustrated
Thursday, September 6, 2007
Our trooper
Tuesday, August 21, 2007
A whole bunch of stuff
Tuesday, August 7, 2007
Conversation with Dr. Stockler
Wednesday, July 11, 2007
MPS Society Press Release for Elaprase
Saturday, July 7, 2007
The MPS Cup
Sunday, June 10, 2007
A sad day
Saturday, June 9, 2007
What a few words can do
Monday, May 21, 2007
Orthopedics & infusion #14
Tuesday, May 8, 2007
What a day
Sunday, May 6, 2007
An eventful infusion week. #13.
Thursday, May 3, 2007
The goods on Tacos for Trey
Monday, April 23, 2007
Infusion #6
Monday, March 12, 2007
Interesting...
Wednesday, March 7, 2007
Infusion # 5, Trey’s birthday, a story on Shaw
Monday, March 5, 2007
Infusion #4
Tuesday, February 27, 2007
Emails from Texas and Quebec
Monday, February 26, 2007
Infusion #3
Monday, February 19, 2007
Article in the North Shore News
Sunday, February 18, 2007
A couple of calls from Alberta
Thursday, February 15, 2007
One year. Wow.
Wednesday, February 14, 2007
Infusion #2 (yesterday)
Tuesday, February 13, 2007
Reactions, hospitals, hernias...what a week!
Friday, February 9, 2007
Kirsten’s response to the Editorial
Thursday, February 8, 2007
An editorial in response to Trey’s article
Wednesday, February 7, 2007
The front page of the Vancouver Sun
Tuesday, February 6, 2007
A monumental day: Trey’s first infusion
Monday, February 5, 2007
Thanks to the scientists and Shire!
Tuesday, January 30, 2007
WE HAVE A START DATE!!!!!!!!!!!!!!!!!!!!
Friday, January 26, 2007
Successful VAD surgery
Wednesday, January 24, 2007
Sleep study & a thank you
Monday, January 22, 2007
Sniff, sniff...
Friday, January 19, 2007
A good good day
Wednesday, January 17, 2007
Still no ERT start date...
Tuesday, January 16, 2007
“Everyone’s on holidays”
Sunday, January 7, 2007
Donating Blood
Saturday, December 30, 2006
Dr. Charlie Peters
Friday, December 22, 2006
A decision is made
Tuesday, December 19, 2006
My floating head...
Friday, December 15, 2006
Conversation with Dr. Kurtzberg
Thursday, December 7, 2006
A little more transplant info
Wednesday, December 6, 2006
Waiting
Monday, November 27, 2006
Another week gone by
Friday, November 24, 2006
Life
Friday, November 17, 2006
Our government said yes!!
Friday, November 10, 2006
Final appointments at Duke
Friday, November 3, 2006
Appointment with Dr. Escolar
Thursday, November 2, 2006
In North Carolina
Wednesday, November 1, 2006
More Thanks
Monday, October 30, 2006
In a writing mood
Sunday, October 29, 2006
So frustrating
Friday, October 27, 2006
Duke Update
Tuesday, October 24, 2006
CBT Possibility at Children’s in BC
Monday, October 23, 2006
So much to think about...
Tuesday, October 17, 2006
Our Upcoming Duke Visit
Wednesday, October 11, 2006
Cord Blood Transplant?
Monday, October 2, 2006
Osteopath Appointment
Thursday, September 28, 2006
Busy Day
Wednesday, September 27, 2006
Hospital Wants to Help
Thursday, September 21, 2006
Hospital Won’t fund ERT
Wednesday, September 20, 2006
Orphan Drug Policy and Family Update
Monday, September 11, 2006
Where we are at today
Saturday, September 9, 2006
Welcome to Our Website
Friday, September 8, 2006
