Mama’s Blog
 
 
Two anniversaries
Wednesday, February 4, 2009
On Monday, February 2, we had a party at BC Children’s hospital to mark two years of Trey being on Enzyme Replacement Therapy. For the boys it meant cupcakes, lots of family and friends, balloons
 
Carpal Tunnel Release
Thursday, December 18, 2008
Yesterday, I came into the kitchen and Trey was telling Laurel that tomorrow the surgeon’s were going to fix his hands so they feel better. He was going to go to sleep and when he woke up he would
 
Full of thanks
Tuesday, December 9, 2008
I was going to keep my write up about our meeting with the government short enough to fit onto the news page, but as I began to write, I didn’t want to stop. And now I’m on the verge of tears.
 
We
 
Felt the urge
Tuesday, October 28, 2008
I usually get the urge to write after I receive news about Trey. This time the news was that Trey has carpal tunnel syndrome (CTS). After hearing Dr. Muenzer speak at the 2008 MPS Symposium that
 
Life these days
Tuesday, October 21, 2008
I have had a few requests in the past couple of monthes to write a blog entry. Where as in the news section I report the more black and white aspects of what is going on and updates in Trey’s life,
 
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