So so many emotions at the Symposium
Monday, June 30, 2008
I’m still reeling from the International MPS Symposium that was held this past weekend in my home town of Vancouver, BC.
The Symposium began with a bang. The first person I met as I walked into the
Tacos for Trey!!!!!!!!!!!!!!!!!!!
Monday, May 5, 2008
I still have a smile on my face from Saturday. How can I not? The number of people who supported us is unbelievable. I don’t even know where to begin (if you want to start with the sap, read the
Steve Nash, Rare Disease Day...
Wednesday, February 27, 2008
It is very timely that this Friday we (Canada) will be celebrating our first ever International Rare Disease Day (more about it below). This past weekend, Kirsten Harkins and Simon Ibell (the ED and
One year of ERT!!
Tuesday, February 5, 2008
Today Trey has been on ERT for one year. We had a small party at the MDU yesterday for his 53rd infusion with cake, presents and many many thanks to all of our family, nurses, doctors and other
What I’m talking about
Friday, December 21, 2007
In my last entry I spoke about being attracted to people who are real. Well, here’s an example. This excerpt is taken from a friend of mine’s Caringbridge website. Her son has MPS III and he was
