Mama’s Blog

Two anniversaries

Wed, 4 Feb 2009 09:07:40 -0800

On Monday, February 2, we had a party at BC Children’s hospital to mark two years of Trey being on Enzyme Replacement Therapy. For the boys it meant cupcakes, lots of family and friends, balloons and

Carpal Tunnel Release

Thu, 18 Dec 2008 13:11:11 -0800

Yesterday, I came into the kitchen and Trey was telling Laurel that tomorrow the surgeon’s were going to fix his hands so they feel better. He was going to go to sleep and when he woke up he would hav

Full of thanks

Tue, 9 Dec 2008 19:28:14 -0800

I was going to keep my write up about our meeting with the government short enough to fit onto the news page, but as I began to write, I didn’t want to stop. And now I’m on the verge of tears. We hav

Felt the urge

Tue, 28 Oct 2008 10:14:53 -0700

I usually get the urge to write after I receive news about Trey. This time the news was that Trey has carpal tunnel syndrome (CTS). After hearing Dr. Muenzer speak at the 2008 MPS Symposium that child

Life these days

Tue, 21 Oct 2008 12:03:10 -0700

I have had a few requests in the past couple of monthes to write a blog entry. Where as in the news section I report the more black and white aspects of what is going on and updates in Trey’s life, I