Media

November 4, 2008
A local parenting and family magazine, West Coast Families, featured an article about Trey. Click here to read the story.

May 14, 2008
A front page article from the North Shore News about Don Bells Private Member’s Bill being passed, in which Trey is mentioned: http://www.canada.com/northshorenews/news/story.html?id=d96c5523-f855-495e-9c6b-e4ba27e01bb3

April 29, 2008
Trey’s story was featured on Shaw’s “The Express” in the week leading up to the 2nd annual Tacos for Trey :

April 28, 2008
The North Shore News wrote a great article about Trey and the situation in Canada with rare drugs for rare diseases. To read it, click on the link: http://www.canada.com/northshorenews/news/sundayfocus/story.html?id=7725c2a5-0a7e-4cad-99dc-91516a126569.

June 28, 2007
An article written in Montreal about the approval of Elaprase by Health Canada:
http://www.checkbiotech.org/orphan_News_treatmentandhealth.aspx?infoId=606

June 27, 2007
MPS Society Press Release for the approval of Elaprase by Health Canada - Click here for the print version: MPS Society release - Final CANADA 20070627.doc and here for the video version: http://www.oromedia.com/shire/eng_can_19JUN07.mov.

June 9, 2007
MPS Cup Speech - I spoke at this year’s MPS Fantasy Hockey Gala Dinner:

June 3, 2007
An interview for the BC Children’s Hospital Foundation Miracle Weekend:

April 21, 2007
The Ottawa Citizen - An article about the lack of Orphan Drug Policy in Canada and how it is affecting Canadian people and families with rare disorders, specifically one family who we have become friends with, the Lanese’s from Ontario, whose son also has Hunter Syndrome. There is also an article about Isaac McFadyen, a little boy who lives with MPS VI, and whose family has become close friends of ours. Hopefully by the next time an article is published, I will have figured out that reporters can and will quote anything you say!? To read the article, click on the link: http://www.rogercollier.com/clipping.feature.20.citizen.observer.orphan.drugs.html.

February 20, 2007
North Shore News article - A story about Trey beginning ERT and the hope that this brings.
Page 1 Page 2 Page 3

February 6, 2007
The Beat 94.5 Morning Show - Our story and celebration the day that Trey began ERT (to listen, see today’s entry in the News section).

February 6, 2007
Front Page Vancouver Sun -Trey begins ERT treatment and the story is featured. Read at:
http://www.canada.com/vancouversun/news/story.html?id=762964f0-c5e1-4767-81ac-b55451fcdb06&k=26625

January 2007
MPS Society Fundraising - The letter that Kirsten Harkins & I wrote for the Canadian MPS Society’s annual mailer. Read at: MPS Society Fundraising.pdf

December 2006
Silk FM Radio Marathon - participation helped to raise funds for the BC Children’s Hospital Fund. Listen at:
Radiothon(2006)_Purcell_Tj.mp3 or in the player below